Hosital Part Two

We were home two nights and one full day. On the second morning of being home, Wade was pretty congested. I was giving him a breathing treatment when he completely stopped breathing. He turned white, his lips turned blue and he just looked so peaceful. Ryan grabbed him, trying to make him breathe again. I told him to put him back on the bed, as I hooked him up to oxygen and began suctioning out his throat. Ryan called 911 as I was doing this. We thought we had lost our baby boy. After about a minute or so, we saw Wade's belly go up once and after another 20 seconds, it went up once more. He slowly started to breathe again when the paramedics rushed into the room and took over.

Once they got him some what stable, they loaded him up in the ambulance, I got up front and we went back to the children's hospital. In the ER there, we found out Wade had pneumonia. We were devastated. Wade was put on antibiotics and breathing treatments starting at two hours apart. We were there for 12 days, had finally gotten bipap, got Wade off of oxygen and it looked like we were going home. It seemed like Wade maybe was aspirating, so a feeding tube was put in until he was healthy enough for surgery. SMA takes away the ability to suck and swallow, so a feeding tube is normal for a child with SMA. That night, Wade's oxygen dropped in the 70s and he did not look good. I requested a x-ray and Wade's right lung had partially collapsed. His breathing treatments went back down to an hour apart and he was put on bipap all day. Through a lot of prayers, Wade's lungs looked drastically better after two days. A few days after that, we were able to do room in, where we do everything to make sure we are ready to go home. After two days, we were released.

It was very scary to go home. We were scared that something may happen again. We prayed that God would watch over Wade and give us the knowledge to take care of him. We were very fortunate to receive nurse care at night. they would monitor him throughout the night and take care of him so we could seep. It was a huge adjustment, but such a big help.